Thursday, July 7, 2011

You have 400 Unread Messages

I knew that by the time my google account went to 400 unread messages, it was time. Time to delete a bunch of them and take control of my email. This would somehow be a good thing.

I thought I'd know the culprit of these unread emails: spam, twitter, youtube notices. Old Hyde Park stuff. Indeed, most of the stuff was from Hyde Park, but I found some of these old emails, too. I though they would be easier to read now, but not really.  I am sure we read all of these originally, since they were sent to multiple email addresses.  

Don Update:
Dr. Shreck wants him to come once a week for 4 more weeks of chemo, then he will have another PET scan to see if anything has spread.   After that, he will determine how often Don needs to do chemo.   He was very pleased with what the radiation has done in making his tumor so flat.  It still has a size in diameter of about 2" but is very flat - it might just be dead cancer cells - the PET scan will let us know.    Dr. Shreck has referred him to a wound care specialist at Methodist to try and help the wound drainage which will make him more comfortable.   He will see the radiation doctor on Friday to see if he needs to have another round of radiation or if we just do chemo.   
 
Sorry I still have to leave early the next 4 Wednesdays - hopefully he will get good PET scan results and we can reduce the number of treatments like we did last time.   Thanks again for your patience as we work through this.
 
I need to leave at 2:00 today to pick up Don from chemo.
 
Don Update: Hi siblings:

Had my treatment today.  It about wiped me out.  When I have them so
far apart they seem to be harder on me.  Getting better tonight
though.

Here is my treatment schedule:

   One three weeks from now.
   Once a month after that--we are not sure for how long.

I will not be having another PET scan unless something happens.  He
said that if the cancer re-occurs, it will be in the same place as
before.  So we will monitor it by watching the place on my scalp where
it started and in my neck where I had the cancerous lump.

The redness and pain behind my ear is from the new glasses I bought.
So I took them back, and they are going to try to get them replaced at
no cost.  That would be great.  I am currently using the glasses I had
before the new ones.

That is my update and I'm sticking to it.

Love,

Don
 


Well, your dad got the phone call from the appeals coordinator and they are still turning down the CyberKnife, saying that it is "experimental" for this particular type of tumor.     Your dad has a message into Dr. Deming to see if there's anything else we can try.   Your dad is also on the phone calling Medicare to see if he can still sign up and if it would cover this procedure or not.    I'll let you know what we find out.
 
Thanks again for calling today!!!!!!
 
Tammy 
 
Then I found some of these other emails: 
Hello family and friends,
 
Earl had his second chemo treatment today following a visit with his oncologist.
 
His doctor was quite pleased with the way Earl tolerated his first treatment.  Earl's comment was, " if I'm doing good, I'd hate to see the ones that aren't!"  Anyway, there will be another CT scan  in the next 2-3 weeks to see how the treatments are working.  His doctor will then adjust treatment accordingly.
 
He also had a flu shot today, so is feeling rather woozy tonight.  Based on past experience, the flu shot alone will keep him from feeling good anytime this weekend. 
 
Lab work today was in the acceptable range.  Some of the numbers are still below normal, but not alarmingly.
 
We'll see how he feels over the next couple of weeks.  He is really trying hard to eat enough food and drink enough fluid to maintain his health.  It's hard for him because he does not have any appetite at all and has struggled with it since his stomach surgery in '95.
 
Once again, we both thank all of you for you love and support.
 
Rodna
 
 
 

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